Hello!
My name is Denise Roeser Jungbert, and I am the President of “Wheels For
Kids”, a non-profit organization established in 2003 to provide wheelchairs to
children with disabilities and their families who could not otherwise afford to purchase
them.
I
would like to tell you a little bit about what brought me here.
My daughter, Ashlee,
just turned 18 years old in October 2006.
From the start, she was seemingly without problems, but at 9 months of
age, Ashlee was not progressing as she should.
Ashlee was weak. We learned
that she suffered from a condition known as Hypotonia Cerebral Palsy.
Ashlee’s
father and I were working full-time, but did not make enough money for the
five-day-a-week physical and occupational therapies, which cost over $100,000
per year. At the time we did not
have health insurance. When we tried to obtain it, we discovered that pre-existing
conditions were not covered. Ashlee’s
first manual wheelchair at age 2, which she quickly outgrew, cost $3,200.
The costs for Ashlee’s therapies, braces and wheelchairs were so high
that my husband and I could not financially support her.
I quit my job, and my husband and I divorced in 1992 in order to qualify
for Medicaid to shoulder Ashlee’s medical bills.
However, we stayed a nuclear family.
We
were told by the doctors that Ashlee would go from a crib, to a bed, to a
nursing home and that would be her life. We
refused to accept this, and vigorously championed her therapies.
Ashlee has now had four wheelchairs totaling $36,000.
Her current custom-made electric wheelchair cost $24,000 and
most recently needed the seating to be refurbished at a cost of $3500.
This
is why I established “Wheels For Kids” – to help middle class families
with children with disabilities keep up with the progressive growth and cost of
wheelchairs. I want to help the
children who fall between the cracks. I hope you will join me on my journey.